I have been having issues with wear time from my appliance - not because my choice of appliance is poor or the product is faulty - but because of the current state of my abdomen. After 4 abdominal surgeries in quick succession, my skin wasn't exactly left in great shape. It wasn't strong enough to hold staples after the fourth surgery and I had to be left open and allowed to heal from the inside out using wet/dry dressing and montgomery straps to hold things tight. A picture to give you an idea of what that looks like:
It is essentially like lacing up your shoes. On either side of the wound there is an adhesive "panel" that has holes on one side. The holes from either side line up along the wound and you lace it up - pulling it as tight as you can to hold the tissue together and help the healing process. To change the dressing you only have to unlace and bend the panels back - not remove them every time.
Once I was done with the montgomery straps and my wound was healed over with no open areas I was left with a divet - for lack of a better term - running right down the middle of my belly, from just below my sternum to my pubic bone. This photo sort of gives an idea of what it is like though it isn't the best angle or lighting.
You can see how the edge of my ostomy pouch sort of "rolls" over the edge and goes down into the divet. Well, the barrier - which is what that part is called - isn't all that flexible. I believe it is made of silicone and it is pliable to an extent - but when you are trying to force something to contour to an area like this, it just doesn't want to. I would be able to get it to stick for a bit as long as I didn't do a lot of bending. Or twisting. Or reaching. Or moving around in my sleep.
So, I would try to tape it down. I have ALL KINDS OF TAPE from the hospital. Latex free. Water proof. Paper. Foam. Seriously, every kind. I tried them all, they all worked to an extent but none well enough to really make me feel THAT secure that the edge wasn't going to lift up and cause me an accident. Not only that, but with the addition of the tape my skin started to have reactions. What it was reacting to I am not really sure - I think it was just the fact of having another thing on my skin. So, my skin would start to weep (get wet) and of course then the tape wouldn't stick. So, I would use an ostomy belt. I also use the ostomy belt when I run for added support FYI. Anyway, the belt was great but it caused the top and bottom edges to begin to raise up because it put so much pressure on the sides. I was in a losing battle it seemed.
Of course my wound/ostomy nurses and surgeon were in on everything I was trying and share their ideas, tips and tricks as well. It got to the point that I was willing to suffer through the weepy, red, irritated skin if it meant not being worried about potentially having an accident.
Then....one day in the mail came the Brava Elastic Barrier Strips. I didn't read over the literature thoroughly at first. I took a look at the product and had a pre-conceived notion of what it was and thought I didn't really have a use for it at the time. For some reason I thought it went UNDER the skin barrier...??? Why? I don't know. One night as I was organizing my in home wound/ostomy clinic (that's supposed to be funny) I opened the product and read through the literature. I immediately took a picture of it and sent it to my wound/ostomy nurse and told her I was giving it a go!
As you can see it is a 1/2 moon shape that fits nicely around one side of a round faceplate, skin barrier - whatever you call the part of your ostomy appliance that adheres to your skin. We all call it something different it seems LOL! You can apply it any which way you want...along the left side, right side. Around the top or bottom. You can use 2 to have coverage all the way around.
I started off just using one on the side of the divet to try and prevent the edge from coming up. I only got 2 in the trial sample so I didn't to use them at the same time and then not have ANY if I ended up liking them!
So there I am with my pouch on and the barrier strip on the edge of the divet.
Here are the two pictures side by side so you can hopefully see what the difference is:
You can see the barrier strip covers part of the skin barrier and then goes on to adhere to my skin. It is so flexible that I can manipulate it into the little crevice/dip/divet and get a really good seal. It truly does help prevent the edge of my skin barrier from coming up. I typically only one strip on that side of the skin barrier - however I have worn 2 to cover the entire circumference of the skin barrier when I am looking to get super extended wear time.
The product is very easy on my extremely sensitive skin. It is stretchy; so when I twist, bend, sleep, stretch, whatever it moves with me and doesn't pull at my skin at all. It is very forgiving. So far I haven't had an negative effect from the materials - it hasn't made me itch, made my skin weep or any of the host of other issues I have had with various tapes in the same area.
I think these will be another alternative to the "sure seal" products that provide added security to the skin barrier for athletic activities and swimming. I had a severe skin reaction to other products that are produced for that purpose and I am happy that I now have the Brava strips to use instead.
20 strips come in a box and you should be able to order them from any supplier that carries Coloplast products. Of course, you'll want to check with your individual insurance company regarding your coverage for this specific item. You can also contact Coloplast directly and request samples of this as well as their other ostomy products. I also use their strip paste, moldable ring, ostomy belt and Assura 1-piece opaque convex drainable easi-close with filter. Click any of those links to go to their website and you should be able to find a spot to request samples.
I hope this review was helpful and if you have any specific questions please feel free to leave a comment here or over on my facebook page Detoured Fashion.
Please remember, we are all different and my experience with a product may be completely different from your experience. That is why it is so great that companies provide samples so that you can give things a try before committing to ordering an entire box of something. IF you have ordered an entire box of something and it no longer suits your ostomy needs - would you consider donating it to one of my favorite non-profits so that it can be distributed to those who may not be able to afford the supplies that they need? You can contact Girls with Guts or email Charis@girls-with-guts.org for more information.
Be awesome and always find your silver lining!
Had to let you know YOU are my silver lining! I have had all the "where's the nearest bathroom?" issues for almost 30 years, caused by Radiation damage from a cancer in 1983. I had Urostomy and Colostomy in June 2012. To make a long story short, the Docs put my stomas less than 3" apart, not leaving enough room for appliances, and they put them in my waistline, so needless to say I've been having major problems finding products that work. My post-op experience had me seriously depressed, out of supplies and could not stop leaking for more than a few minutes. I then had a relatively normal 8-9 months. (Another story:)) Then recently our insurance co went bankrupt so we had to find new coverage. Big blessing so far, I'm now able to get brand name supplies, and not limited to Genairex products. But my first week of trying out the known Brands, I had been so excited and hopeful, had ended in disaster. I spent Saturday crying between at least five changes of clothes and trying to get the new ConvaTec Esteem moldable Ostomy system to adhere. For some reason the Fabric collar would not stay attached to the barrier. I was sooo feeling sorry for myself. Then I got sidetracked reading forums for answers, and found your blog. I said to myself if this young lady can make it work, with all her problems, so can I! You gave me the strength to try again. And even though I was going to a Doctors appointment, I was resolved to try again anyway. I knew I NEEDED it to work. So armed with extra sets of supplies and clothes I did it AND it worked! A major miracle for me. I know it may not work again, but at least I have had one good experience, which gives me hope, thanks to you. A great big Hug to you with my thanks for writing your blog.
ReplyDeleteBarbara Allen
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ReplyDeleteWhen I came to know that there is something called Hernia Support Belt or Ostomy Belt then I felt a great relief. It is a good invention for those people who have surgically operated their abdomen to expose the internal organ to the outside environment. Ostomy is a life saving equipment. Your review is very useful and I shall share it with other patients who are seeking to by that product.
ReplyDeletethanks a lot. tips were useful
ReplyDeleteNice article on ostomy paste
ReplyDeleteNice post. Well what can I say is that these is an interesting and very informative topic on coloplast brava
ReplyDelete